I have perm guardianship of my 5-year-old grandson. At age one, he was diagnosed with having 2 CVA strokes, cerebral palsy, complex partial seizures, autism and sensory processing disorder.
He’s extremely low verbal, mentally delayed (age wise) and developmentally delayed but academically excels. We have both struggled in more ways than one but have come through, conquered and moved to the next challenge ahead of us.
We limit the content of what and how much he watches on the telly and with any of his toys. He’s also not your typical “boy”, very mind challenged/wit.
There is one thing we have not been able to conquer …
A little over 2 years ago – suppose it could have been longer – he started seeing things, things that neither I nor my husband could see. Things that would literally scare him to death – 100% panic attack, frozen in his own body – petrified. I can’t explain the intensification of his horror. He’s literally frightened to death of whatever he sees!
The room is off limits! –
What child wouldn’t love to have a huge bedroom all to themselves? Not this one – there was something about this room that he refused to go into other than to sleep. He would not play in the room. He would not leave his crib/bed until you came in to get him. He wouldn’t get dressed in the room. Nothing! Unless you stayed in the room with him.
We moved the beginning of this year to another state. With the new house came a little boy that plays in his room now!!
Something/one was on/in the stairwell –
We are all in the kitchen at my Aunt’s house on vacation and suddenly we hear him scream/cry in the most horrifying pain – My husband and I go running. Only to find him scared stiff at the foot of the stairs – like Freddy Kroger was up there, just waiting to mutilate him. If we even tried to put him down on the first step, or if we tried to walk up the stairs together, the terrified panic increases drastically.
The whole family got together to vanquish the monster in the stairwell, with no success! He finally passed out on the couch and we took him upstairs to bed. The next day, it was like nothing happened!
Something was in the bathtub –
He has a fascination with water, he is literally drawn to water and I must constantly keep a 100% eye/hear on him around it! From my desk, I have direct eye/hear shot of the bathroom and I go in there every few minutes.
He’s playing as nice as can be with all his underwater animals as he always has. Suddenly that screech of terror was unleashed and he completely jumped out of the tub. I literally dropped what I had in my hands and went running.
He’s staring at the tub with a petrified look upon his face while chanting, “I cant pee wet” over and over again. I examine the tub thinking there’s a floater or something, but there was absolutely nothing! Nothing, accept my the new heart attack I was having (figuratively speaking).
I asked, “did you pee in the tub”, reply: “No” then back to chanting. “Did you poo in the tub”, reply: “No” then back to chanting – meanwhile the terrifying sobbing continued.
I explained there was nothing there. I took photos and showed him there was nothing there. I felt the water it was warm. I pretended to catch this evil monster and flushed it down the toilet.
I had to literally drain all the water and run a fresh bath – then it was a fight to get him back into the tub, but he gave in – I stayed and bathed him all over again like it was the first time he was in the tub that evening. All was fine about 5 minutes later.
Run for the hills, the spiders are coming! –
It’s only been within the past 1.5 years that my grandson has been able to verbally been able to express himself (well at least to a point that we can semi-understand him).
Spiders! Spiders! They seem to be everywhere! I swear, NOT in my house! Playing nicely in his room, I decided to just rest my eyes for a bit only to be woken to a 5-year-old stampede of terror crying rushing towards my room.
Apparently, there are spiders!! We have never, ever, seen any spiders in our house, not even the basement; but he sees them! There are times he sees them while eating and refuses to go back into the kitchen to finish eating. Other times it’s in his room while playing. Whatever it is, it’s extremely random and spontaneous.
While we are on the topic of spiders, here’s another situation …
He will go outside on our patio with no problem – With shoes on! If he’s barefoot or in socks – Nope, not going to happen! You’d think the patio floor is flowing lava ready to devour him. He will frantically run in an utter panic on the tip part of his toes (like a ballet dancer) and leap onto us sitting in the wicker loveseat.
Dinosaurs save the day! –
He will play for hours on the floor with his cars and trains. This is an everyday ritual. Suddenly, my husband sees him poking at the floor and jumping back 3 feet along with the terrifying cry. He runs to my husband and leaps onto his lap, still crying frantically.
After a minute or so, he gets down with caution, proceeds to the area and starts scratching at a particular spot on the floor and starts to lick the floor!!
Later that evening, my husband and I came into the room where the incident happened, only to find his dinosaurs lined up and on guard. I accidentally knocked the T-Rex over. The following morning when I came back into the room, T-Rex had been stood back up and all dinosaurs in their proper stance.